Dravet Syndrome is a rare, genetic form of epilepsy in infants that commences following a fever. Until its onset, the infant presents with normal development and health. After seizures begin, the infant’s psychomotor development (cognitive, motor, social and emotional faculties) slows down and mental regression sets in.
If there is history of Dravet Syndrome on either side of your family, be alert for a seizure linked with fever during the first year of baby’s life. Early life seizures can last longer than two minutes. They are frequently repetitive, resulting in status epilepticus, where seizures are 30 minutes or more.
Early seizures are generally characterized by all four limbs jerking, which is generalized clonic seizure. Or, limbs may jerk on one side of the child’s body, which is hemi-clonic seizure.
The root cause of Dravet Syndrome is a defective gene, which is mandatory for proper brain cell functioning. At present, there is no known cure. All a parent can do is treat the signs and symptoms.
What are Signs and Symptoms of Dravet Syndrome?
– Frequent, prolonged seizures – commonly triggered by photic stimulation i.e. flashing lights or patterns
– Autistic-like behaviors
– Seizures may be generated from changes in body temperature, such as hot weather or warm bath
– Seizures with or without fever
How Does Dravet Syndrome Affect Children?
Acquired skills progressively regress during the child’s second year. Neurological symptoms, such as ataxia or lack of coordination of muscle movements may manifest. Developmental delays may be observable.
Body temperature is poorly regulated and the child’s resistance to infection declines.
Secondary challenges can include:
– sleep interruption
– unsteady gait
– physical growth slows down
Ultimately, the syndrome can be catastrophic.
How Does Ouchie Cap Aid Children with Dravet Syndrome?
Ouchie Cap helps regulate body temperature of children with Dravet Syndrome. It frees up your child’s ability to play outdoors during winter or summer. Soon children will know when they don’t feel ‘right’.
If you insert the warm or cold, non-toxic gel packs into the sweet little cap and put it on your child immediately, it is possible to prevent the seizure.
BTW: As you know there are many different types of seizures. Be aware of them by reading our post:
Or, click to see why Ouchie Cap is the parent preferred method for Dravet Syndrome Treatment.